Despite A New, Functioning Kidney, Joey Still Facing Challenges

Kidney for Joey
Joey and Mike Miller, his kidney donor
Joey and Mike Miller, his kidney donor

Dana Richman’s son Joey waited months for a kidney donor, and finally found one. Joey was on the mend after New Tampa resident and former MMA fighter Mike Miller stepped forward and donated a kidney, but then, he got sick again.

This time, though, it was cancer.

And, in the middle of a series of touch-and-go stays in the hospital, with Dana unable to work due to the volume of her son’s doctor’s appointments and wondering if Joey would even make it through the night, she received news that the home she shares with her sons Joey, Jason and Jake was headed for foreclosure.

“Can you give me five minutes to catch my breath,’’ Dana wondered aloud.

Once again, Joey, a Wiregrass Ranch High grad and hopeful University of South Florida Student, is in a life-altering battle, and his mother and brothers stand firmly in his corner, along with a good number of Wesley Chapel residents.

Joey, 22, whose #AKidneyForJoey hashtag campaign to help him find a donor drew a lot of attention earlier this year, including a story we wrote in our Apr. 8 issue. Joey got his kidney, thanks to Miller, at the time a New Tampa resident and fledgling mixed martial artist.

And, for a few days — especially the first few days after his April 20 surgery — Joey was feeling terrific, hopeful that he had beaten Allport’s Syndrome, a genetic condition that causes hearing loss and kidney failure. In fact, his new kidney had started functioning immediately, even before doctors had a chance to close him up.

But by June, he had started feeling fatigued again. His esophagus was bothering him, and he thought it might be related to ulcers. According to Dana, she was told that her son was fine, and that his body was still adjusting to the new kidney. His medications were tweaked, he was no longer on dialysis and Joey continued to recover, still confident he was inching closer to normal.

But, after helping his brothers fix a hole in the roof of their home, Joey says he felt dehydrated and weak.

“He spent the weekend curled up on the couch from pain,’’ Dana says.

He was taken to the hospital on July 5, where doctors found lesions on his esophagus. They were sent off for biopsies and Joey was sent home.

On July 9, the phone rang. “They just said he needed to get back to the hospital immediately,” Dana says.

When Dana and Joey returned to Tampa General, the news was bad — he had lymphoma, a form of cancer that affects the immune system.

Dana says the doctors told her the cancer was a quick and aggressive form, and a direct complication of the kidney transplant. Joey remained in the hospital the rest of the month, and he had to be taken off the immune suppressants he was on that prevented his body from attacking his new kidney.

Dana claims the kidney transplanted into her son was not a perfect match after all, and that it had the virus that causes mononucleosis. Because Joey was on immune suppressants, there was nothing to stop the mono from spreading.

“One doctor told me there was a 1 percent chance of something like this happening,’’ Dana says. “She said he hadn’t seen this in 20 years.”

Joey was crestfallen. “The diagnosis was pretty traumatic for him,’’ Dana says. He told me, ‘No matter what I do, I keep winding up on death’s doorstep.’’’

Dana says his condition quickly worsened, and it was “hour-by-hour” — his white blood cells had bottomed out and he wasn’t responding at one point.

The few moments of peace he and his family had enjoyed immediately after the surgery was now gone, after months of believing he was getting closer to being in the clear.

It was during this time that Dana says she was told a forbearance agreement she had gotten, which would have delayed the mortgage payments on her family’s home while she went through the kidney donation process, was no longer approved. The mortgage company told her she was $15,000 behind and in foreclosure. She says a lawyer stepped forward and is currently helping her resolve the issue.

The home, she said, means a lot to her and the boys. That’s why Joey was repairing the roof ahead of a big storm. She is going through a difficult divorce, she says, and this is where Dana and the boys have decided to rebuild a new life.

It Takes A Village

Dana wouldn’t want to be anyplace else, she says. The outpouring of support she received when Joey was in need of a kidney was breathtaking, but this time, it has been even greater.

Organized mostly through the 11,000-member Wesley Chapel Community Facebook page, a number of fundraisers have been planned by the likes of 900 Degrees Woodfired Pizza (see ad on pg. 36), with owner Steve Falabella agreeing to give 25 percent of all sales on Aug. 23 to the family.

Other Wesley Chapel businesses, some selling jewelry, massages, clothing alterations, shirts and aesthetics treatments, have all donated portions of their sales during August to the Richmans.

Pinot’s Palette (see ad below) is hosting an event Saturday, August 27, with 20 percent of sales donated. There is a GoFundMe page at GoFundMe.com/akidneyforjoey, and the community has pitched in to organize a “meal train” to bring daily meals to the family through the TakeThemAMeal.com site.

“It has been amazing,’’ Dana says.

And the news is getting better.

Joey now is undergoing chemotherapy. He is halfway through a six-round dosage, receiving one every three weeks. The tumors are shrinking; his hair has started to fall out.

“He’s doing good,’’ Dana says.

His new kidney is functioning at 100 percent. He is back on low-dose immune suppressants, and the mono is gone.

Dana says the doctors tell her that there is a good chance he will keep the kidney, and a 70-80 percent chance they will kill the cancer, although there is a higher risk from here on out he may redevelop it in the future.

Joey’s spirits are up and he hopes to take some online courses this semester at USF.

“He just wants to be healthy and normal again, it’s all he wants,’’ Dana says.

“He’s one tough cookie.”

If you want to donate, visit GoFundMe.com/akidneyforjoey. To visit some of the contributors to Joey’s recovery, check out the Wesley Chapel Community Facebook page.

Father Finds Some Solace After Son’s Killer Is Captured

Angels
(l-r)Wade, Wade Jr., William and Lynn Angel.

Wade Angel walked his wife to the garage around 5 a.m. the morning of August 9, kissing Lynn goodbye as she slid into the driver’s seat.

He returned to his computer, where he has spent almost every free moment the past three years in his Wesley Chapel home, and checked his email. One had just popped in, from the State Attorney’s office.

Just one line: “Mr. Angel, we have good news, Christopher Ponce has been arrested.”

He started yelling for Lynn. Even above the din of her car engine, she could hear him, and hopped out of the car, meeting him at the garage door.

He told her what the email said. They started crying, and held each other’s shaking bodies in their arms.

“Three years of bottled-up emotion,’’ Wade says. “One minute we were crying, the next minute we were laughing and jumping up and down, and the next minute we’d be crying again.”

Christopher Ponce, accused of killing 20-year-old William Brooks Angel in 2012 while driving drunk, was arrested in Spain on Aug. 9 after a manhunt lasting more than three years.

Ponce was driving the wrong way in the northbound lanes of I-275 near downtown Tampa when he hit William Angel’s 2000 Ford Mustang, also seriously injuring passengers Jay Davis and Robert Newberry.

On May 9, 2013, Ponce slipped off an electronic monitoring bracelet he had been wearing while awaiting trial for DUI manslaughter. He has been on the run ever since.

In 2014, CNN’s “The Hunt”, hosted by John Walsh of “America’s Most Wanted” fame, profiled the case.

Wade has spent the last three years hunting his son’s killer. Until this year, he had been doing it on a full-time basis, leaving his job building and customizing wheelchairs at Shriners Hospital for Children in Tampa, to set up a website — FindChrisPonce.com —dedicated to the search and asking for tips.

He received many, but they all proved fruitless. New York City police interviewed someone in a bar there based on a tip. In Chicago, police visited a house they were told Ponce might be, and the same for a house in California.

Wade, however, never lost his drive.

“If William were here, he would say, ‘Dad, let it go,’” Wade says. “But, I made a promise. I did this for him, not for me. I wasn’t going to stop.”

He scoured the internet for 15 hours a day, and blogged often about Ponce. Wade was in constant touch with U.S. Marshalls and FBI agents, hopeful they were closing in on the fugitive.

For these last three years, the search consumed him. He says Lynn became concerned.

“But, she understood that the day we went to the funeral home to see my son’s body, I promised him that I was going to make sure that justice was done,’’ Wade said. “I thought by that I meant I was saying I would stay on top of the attorneys and get a proper trial and a lifelong sentence. But then, (Ponce) takes off. So, before I can get justice (for William), I have to find him.”

Although he continues to devote every free hour to the hunt, Wade finally returned to work in January, but not before posting this on Jan. 15, 2016: “I truly feel that this is the year we get him.”

And now, it is.

According to Wade, a reporter for Ideal, a newspaper in Granada, Spain, who broke the story, told him that Ponce had been acting suspiciously in a bus station in nearby Almeria, in southeast of Spain near the Mediterranean Sea, when police asked for his identification.

Ponce supplied a forged Mexican passport, and the name on his bus pass was not his. After fingerprinting him, Spanish police discovered he was listed in an Interpol fugitive database.

Ponce currently is awaiting extradition. The Ideal reporter told him Ponce is currently being held in one of the area’s tougher prisons. That made Wade happy.

He is not surprised at all that Ponce was caught in Spain. He received a tip through the website shortly after starting it in 2013, that Ponce was headed for Spain. So, he began tracking Internet Protocol, or IP, addresses, which are the numerical labels assigned to any device on a computer network that uses Internet Protocol, to see if anyone was checking his site from Spain.

Every month he would download all the IP addresses in a spreadsheet and email them to U.S. Marshalls.

Someone was definitely checking his website from Spain. Once in a McDonald’s, but usually on public wifi from bus stations.

Wade says, “When he was arrested in Spain, I said ‘I knew it!,’” adding that Ponce and his family are too narcissistic to resist the chance to see their names in print and wonder what people were saying about them. That’s one of the reasons, he says, that he started the website, hoping to catch Ponce electronically.

He would try to raise Ponce’s ire — “to get his dander up” Wade says — by posting negative things, hoping to bait him into commenting or trying to contact him.

“Since Christopher is a drunk and an addict, I thought maybe one time he would be drunk and high and he’d make a mistake,’’ Wade says.

Ponce may not have been directly captured because of any leads from Wade’s site, but because he was captured in a bus station, where so many IP address hits had come from, he could have been on his way to use the station’s public wifi.

Either way, it doesn’t matter, Wade says. Ponce will have plenty of time to read the site dedicated to putting him away for life from prison, where he will end up.

Wade’s last website update read, in part: “CHRISTOPHER PONCE HAS BEEN ARRESTED IN SPAIN!!!!!!!! That’s right, the POS is finally in jail.”

Wade promises it won’t be his last post, however.

“The website is still up, and I will continue to write,’’ Wade says. “I will take him (Ponce) through the extradition and then take him through the trial. I’m not done yet. The day he is sentenced, that will be my last post.”

You can follow Wade’s journey at FindChrisPonce.com, or on Facebook at Facebook.com/findchrisponce.

Wesley Chapel Mourns The Loss Of Capt. Jack

Capt_JAckIt was a frequent sight in front of one local Publix — a golf cart dressed up with fire-engine red paint, diamond plate bumpers, and even a fire truck-style bell. Sitting in that golf cart was “Captain Jack,” the nickname John Joseph Whalen, Jr., had since his days as Captain of the Fairview Fire District in Poughkeepsie, NY.

Capt. Jack was known to many as a kind, friendly man, ready with jokes and endless stories for anyone who would take the time to listen.

His golf-cart-turned-fire-truck is missing from the Publix parking lot now. Capt. Jack died on Saturday, August 13.

Shortly before he passed away, the mileage on that golf cart rolled over to 10,000 miles. The round-trip from his home in Meadow Pointe to the Shoppes of New Tampa on Bruce B. Downs Blvd. at S.R. 56 is just over seven miles, so he must have made it more than 1,300 times. That makes sense, considering he made the trip every day he could for the past 10 years.

For years before that, when he was driving his Buick decorated with many stickers supporting his fellow firefighters, he dreamed up that golf cart. When it was time to have it made, because he wasn’t able to drive anymore, his grandson Jason designed it with him. By then, the terror attacks of September 11, 2001, had happened in Capt. Jack’s home state, and it had a deep impact on him. He lost friends and comrades that day, so he designed his own “fire truck” as a tribute.

Then he used that golf cart to connect with people here in Wesley Chapel.

Little Jacky

John Joseph Whalen, Jr., was always called “Little Jacky” as a child to distinguish him from his father. He was born January 31, 1925, and celebrated his 91st birthday surrounded by his family earlier this year. He was a father of three — Greg Whalen, Sue Ann Yero, and John Joseph Whalen, III — with four grandchildren and four great-grandchildren. One of his great-grandchildren carries his name, John, and his youngest great-grandchild is Skylar, who is just seven months old.

Capt_Jack3As a young man, Jack joined the Navy and fought in World War II. His children remember that he had nightmares about the time his shipmate was killed right next to him on the U.S.S. O’Bannon. After three years of service in the Navy, he returned home to New York, where he began working for the Fairview Fire District.

“Whether it was in the Navy, or as a firefighter, he always served people, and saved lives,” says his son, John.

“He had been through a lot,” John continues. “The fires he was involved in, with those old, wood structures in New York, two or three blocks would go up in flames.” Whalen also helped fight a big chemical fire, when the chemical tanks blew up. Many years later, his injuries from that fire caused him to lose one of his legs.

But, that didn’t get him down. Always the jokester, if he bumped his prosthetic leg into something, he’d grab a Band-Aid and put it on his “leg.”

In 2014, Jack lost his wife Louise, whom he had loved for 65 years, to Alzheimer’s. She had been a registered nurse, which is how they met back in the early 1950s. He was a patient being treated for smoke inhalation in the hospital where she worked.

His children say his health was poor and he never expected for her to pass away before him. But, even with his disability, he cared for her at home as long as he could, until she moved into assisted living for the last couple years of her life. “He has lived alone these last two years,” says John, “but he didn’t want any help from us.”

Capt. Jack and Sparky

So, he would drive his golf cart up to Publix – and sometimes Walgreens at the corner of BBD and County Line Road – to visit with people. He would park the “street legal” vehicle, complete with a license plate and handicapped sticker, in the same spot.

There, he would talk with anyone who approached him, whether it was kids wanting to pet his gigantic stuffed Dalmatian, which he affectionately named “Sparky,” or people wanting to pose with him for pictures.

CaptainJack2“He loved to let kids ring the bell on his golf cart,” says John. “He loved to tell jokes and to tell stories about the war, and stories about the fire department.”

Even after the decades of hearing his stories, his children say they never tired of them, and they didn’t feel like they were hearing the same ones over and over again. The jokes, yes. “He’d always ask, ‘Want to see my pride and joy?’ and you’d think he was going to show you a picture of his grandkids or something. Nope,” says John, showing off a little card with a picture of a bottle of “Pride” cleaning product and “Joy” dishwashing detergent. And, if anyone asked for “his card,” he showed them a business card sized paper that just says “HIS CARD” in large letters. Greg, Sue Ann and John saw him make people smile with those two cards quite a bit.

“He was a character,” says Sue Ann. “He was truly larger than life.”

A Bright Light

Capt. Jack loved the celebrity that came along with his unique mode of transportation and his willingness to spend time and share stories with his neighbors, his children say, but not because of an ego. He had always served people, and being friendly was his way to continue serving.

That’s how Meadow Pointe resident Sasha Lash met him. She was walking into Publix one morning with her son — still young enough that she referred to him as a baby, but he was big enough to spot Capt. Jack’s “fire truck” and wanted to go see it. It caught his attention because his daddy — Sasha’s husband — works for Tampa Fire Rescue.

“We said ‘hi’ and he loved that I had a little one,” Sasha remembers. “Capt. Jack let my son pet Sparky and ring the bell on the cart, and he showed him all the stickers.” After that first meeting a couple years ago, Sasha says she saw him often, introducing her older son, now 8, to him, too.

Capt_Jack5As they got to know each other, Capt. Jack had quite a bit of advice for the firefighter’s wife. “One thing stands out,” she says. “He told me to always be open to listen to my husband when he wants to tell stories about the job. First responders sometimes see the worst of the worst, so if he’s in a horrible mood, it may be because of something he’s experienced. He told me to be slow to anger, loving, and always kind.”

Sasha says she considers it, “profound advice” and is grateful for it. “It’s very true and poignant, and it’s just one of the things I learned from Capt. Jack.”

She adds, “It’s like a bright light in Wesley Chapel has gone dim,” Sasha says. “We need more people like him who aren’t afraid to get out into the community and be kind, and spread joy, and make the best of life.”

Fighting Until The End

Capt. Jack got up early every morning, a habit he developed when he was promoted out of shift work at the fire department and began a steady 5 a.m.-4 p.m. shift.  His children remember hearing the scanner in the middle of the night, causing him to jump out of bed and race to a fire. The equipment he had was crude — his son Greg says we should be thankful firefighters have much better technology today — and his kids think Whalen’s health problems were related to all of his years fighting fires without any real protection.

They recall that he always rode in a fire truck with an open-air cab, even in the middle of winter. When calls came in, the firefighters knew the general location of the fire, but they had to watch out the top of the open vehicle to see the column of smoke that would indicate the exact location of the fire. Sue Ann recalls a particular fire, in the middle of winter, when it was so cold the water was freezing as her father and the other firemen tried to use it to put out the fire.

Capt. Jack retired from the fire department in 1979. Louise worked for five more years, then they retired to the warmer weather of Pine Island, FL. Once while living there, Jack had to be airlifted to the hospital. So, he and Louise decided they would move closer to family and closer to more modern facilities. And, in 1996, they bought a house in Meadow Pointe.

When Capt. Jack passed away, he had been in poor health for quite a while. “His heart and lungs were bad from his firefighter days,” says John, as he and his sister, Sue Ann, rattle off a list of problems he was experiencing. “But, he went when he was ready. He waited until I got down here. I was stuck in Georgia and he waited until I got here to say good-bye.”

Sue Ann calls him a “consummate fireman,” and says he had a special relationship with the firefighters from Pasco County Fire Rescue Station 26, located on Aronwood Blvd. in Meadow Pointe. A whole bunch of them came to visit Whalen in the hospital shortly before his death.

Greg says Capt. Jack sat up and smiled. “My brothers are here,” he said.

Capt. Jack’s memorial service will be held on Tuesday, August 30, 6 p.m., at Whitfield Funeral Home in Zephyrhills. The family asks that, in lieu of flowers, donations be made to the International Association of Fire Fighters.

To make it special, the family plans to have his golf cart at his memorial service, where everyone who attends will be asked to ring the bell in his honor.

A formal ceremony also will be held at Bushnell National Cemetery, where Louise already is buried. One of Jack’s grandsons currently serves in the U.S. Army, and he will honor his grandfather by presenting a U.S. flag to the family as part of the ceremony.

Through tears and laughter, his family remembers him.

“He loved his family, he loved kids,” says Greg. But, most of all, “he loved people.”

“He was always larger than life, over the top,” says Sue Ann. “He left a mark wherever he went.”

“You hear about legends – and most of the time they’re fiction,” adds John. “But he was a true legend.”

Nibbles & Bytes: Toast Is Toast!

ToastWEBI was saddened to learn that Toast Wine & Café, located in the Oak Ramble Plaza (which still has Acropolis Greek Taverna, Mr. Dunderbak’s, Jersey Mike’s and Takara Sushi & Sake Lounge, among others) had closed, and apparently it’s been more than a month since it happened at our press time.

Toast started out with a group of owners, all of whom lived in New Tampa or Wesley Chapel. It also began as primarily a wine bar with minimal food, but grew into a pretty good restaurant with reasonably priced food, great retail wines by the bottle or glass, coffee and entertainment, all in a cozy, casual setting, is the latest in, unfortunately, too long a list of my favorite mom-&-pop restaurants in our area that is no longer in business.

And, speaking of those mom-&-pop places, help out as many as you can by entering our 2016 Reader Dining Survey & Contest, where you can win a $50, $100, or even $200 gift card to the restaurant of your choice in the Tampa Bay area!

Check out our latest issue to enter!

NTJWC’s Frankfurth Named National Director Of Jr. Women’s Clubs

FrankfurthWEBThe General Federation of Women’s Clubs (GFWC) announced in June that long-time local Woman’s Club Board member and past president Jolie Frankfurth, is now the 2016-18 GFWC Director of Junior Clubs.

Frankfurth was named Director Elect in 2014, and installed the weekend of June 25-29 of this year in Baltimore. She is the first Florida woman since 1972 to hold this position.

“I’m ready for this,’’ Frankfurth said.

Her first day on the new job was Saturday, Aug. 6. “She was elected by a membership of more than 80,000, has been with the organization a substantial amount of time and her charity work has been outstanding,’’ said Michelle Furman, the GFWC director of communications.

Frankfurth has risen through the ranks of the GFWC, which specializes in grassroots charity work with more than 27 various non-profit organizations such as St. Jude’s Children’s Research Hospital, since starting with the GFWC New Tampa Junior Woman’s Club (NTJWC) 20 years ago.

At the time, she said, the New Tampa area was still just mostly a road to S.R. 54.

“There were a lot of young families with children moving to the area,’’ she said, adding that the New Tampa Juniors was a perfect fit for her.

Frankfurth is a University of South Florida graduate, with a Bachelor’s degree in Business Education and a Master’s degree in Educational Leadership.

Locally, Frankfurth has made an impact on all levels of membership. She has been an Advisor of the GFWC New Tampa Juniorette Club the past five years and has been president of both the GFWC Woman’s Club of New Tampa and the NTJWC.

“The richness of our great Federation is in the character, diversity and passion of its membership,’’ Frankfurth said. “Our work these next two years should be about attitude and actions to making good things happen in our local communities.”

For more info, visit GFWC.org, GFWCWomansClubNewTampa.com or GFWCNewTampaJuniors.org.