Tag: cancer

Local HOSA Students Promoting Breast Cancer Awareness

Health Occupations Students of America, aka HOSA-Future Health Professionals, is a global student-led organization that actively promotes career opportunities in the health industry, and four New Tampa-area residents who all attend Strawberry Crest High in Dover and participate in the school’s International Baccalaureate (IB) Programme have created “Project Pink” to raise awareness about breast cancer.

Strawberry Crest sophomores Elizabeth Chettipally, Aditi Nair, Anika Prasad, and Netra Vijay (photo) will participate in HOSA’s Community Awareness competition by focusing on breast cancer, which affects more than 250,000 women (killing about 42,000) each year in the U.S. alone.

“Our team first felt the urge to raise awareness for breast cancer when we saw how fiercely one of our team member’s family (members) fought against breast cancer,” Anika wrote in the Crest Critique. “Being females and students, we saw the lack of education and awareness of breast cancer in our community and decided to make a change.”

To begin their quest to raise community awareness of breast cancer, the four friends spoke to Archana Nair, RN, an advisor in the Breast Clinic at the Moffitt Cancer Center, and Shilpa Sachdev, MD, an internal medicine specialist in Wauchula, FL. They also met with Shreya Shivan, a student at the USF Health Morsani College of Medicine.

“Through these discussions, our team realized that the subject of breast cancer is extremely personal, and a strong support system is needed by women survivors to reclaim feminine identity,” Anika wrote.

In October — also known as Breast Cancer Awareness Month — the quartet began their efforts by staging a “Pink Out” (getting students at their school to wear pink, including the cheerleaders at the Strawberry Crest football game that night). They also participated in the Cory Lake Isles Unity Walk in November.

“I feel like that even though a lot of people know about breast cancer, when it comes to the facts, to the details, we’re all lacking,” Netra says. “There’s also a lot of stigmatization about breast cancer because, when you talk about someone’s breasts, it’s a very taboo topic in our society, so I feel like it’s something people need to know about before the diagnosis.”

Anika adds, “We also want people to know that just because you’re diagnosed, it doesn’t mean it’s the end. We just want to spread hope to them.”

The group also will participate in Dr. Helene Robinson’s “Hugs from Heaven for Sister Warriors” breast cancer awareness podcast. Dr. Robinson is a faculty member at USF’s Sarasota-Manatee campus.

In addition, the friends recently hosted a HOPE Kit packing party (photo left), in partnership with the National Breast Cancer Foundation — with donated items, such as makeup, wrist bands, notebooks, travel mugs and other “goodies” — that will be mailed to women who are struggling with breast cancer across the country.

Their school reposted the announcements the girls made on their Instagram about the packing party and also has allowed them to set up tables in the school’s library and talk with other students after school assemblies. They also were permitted to broadcast the “Pink Out” at the end-of-the-day announcements for a week before that event. The school’s Student Government Assn. and PTSA also helped spread the word about the girls’ efforts.

And, while there are more than 100 HOSA students at Strawberry Crest, the four friends are the only ones participating in the Breast Cancer Awareness campaign. They all will travel to Orlando April 13-16 to participate in the State of Florida Leadership Conference for HOSA, where they will make a presentation about their project.

For more info, visit “Project Pink” on Instagram, “CrestProjectPink/Videos” on YouTube or schshosa.wixsite.com/projectpink.

Habla Español? There’s Cancer Support For You

When Mariela Labrador, a long-time parishioner of St. Mark the Evangelist Catholic Church on Cross Creek Blvd., found herself a caregiver for a loved one with cancer, she looked around for resources and support from her community.

As a native Spanish-language speaker, she found it helpful to connect with others who understood what she was going through, and where she could communicate without any language barrier.

She found Latinos Unidos Por Un Nuveo Amanecer (Latinos United for a New Dawn, or LUNA) online at LunaCancerFL.org. LUNA’s mission is to reach out to the Spanish-speaking community to help cancer patients, survivors and their families.

Over time, Mariela began volunteering for the organization, which has been part of the Tampa Bay community for more than 20 years, and eventually, she became a member of the organization’s Board of Directors.

Earlier this year, Mariela says, she decided to connect her work with LUNA to her church and organized a support group to meet at St. Mark’s for Spanish speakers who are facing cancer.

She says she hopes to grow the group to be large enough to support bringing in guest speakers on relevant topics, such as nutrition, relaxation, or pain management. But, at this time, she is focusing on building relationships and growing the group so people can share experiences and lean on each other.

“At this point, I’m concentrating on reaching out to the community and identifying the needs,” Mariela says.

The local LUNA group meets at St. Mark’s on the third Thursday of each month, from 6:30 p.m.-8 p.m.

While the group took a break over the summer, its next meeting will be held on Thursday, September 15. All are welcome to attend. You do not have to attend St. Mark’s or be of any particular faith tradition to participate in the support group, and there is no need to RSVP in advance.

Anyone who has questions or needs more information, can call the church at (813) 907-7746.

cancer Spanish st. mark the evangelist

Moffitt’s Partnership With AdventHealth WC Just The Beginning

Moffitt Cancer Center VP of government affairs Jamie Wilson (right) asked Jim Engelmann & the other North Tampa Bay Chamber members in attendance at the NTBC’s Sept. 26 Economic Development Briefing for their support of Moffitt’s efforts to receive more funding the state’s cigarette tax revenue.

The Moffitt Cancer Center, which recently forged a new partnership with Advent Health Wesley Chapel, could be making an even bigger footprint in Pasco County, with talk of a massive research center at the intersection of S.R. 52 and the Suncoast Pkwy.

But to do so, Moffitt will need money.

Jamie Wilson, the vice president of government affairs for Moffitt, spoke to local business leaders at the North Tampa Bay Chamber (NTBC)’s Economic Development Briefing at Hunter’s Green Country Club on Sept. 26.

Wilson’s presentation is part of a more aggressive effort by Moffitt to convince the state legislature to raise the cancer center’s share of Florida’s annual cigarette tax.

“We have grown from a small cancer hospital with 409 employees in 1986 to 2019, where we now have 6,500 employees serving more than 68,000 patients a year,” Wilson said. “The demand continues to grow. We’re asking our legislature to partner with us again, and groups like this Chamber to support our (request).”

Wilson told the NTBC members in attendance that Moffitt, as the state’s only Comprehensive Cancer Center, is asking to increase its share of the cigarette tax from 4.04 percent this year to 7 percent next year and 10 percent in 2023. Each increase would produce an additional $11 million in annual revenue.

The existing Moffitt Cancer Center on the University of South Florida (USF)’s Tampa campus off Bruce B. Downs (BBD) Blvd. and E. Fowler Ave., is 33 years old, and Wilson said there is no space available for growth in cancer research or treatment there. He said there were 130,000 people diagnosed with cancer last year in the state of Florida — and that number is expected to continue to grow.

“There is more and more demand every year,” he said. “We are seeking additional assistance from the cigarette tax so we can accommodate that growth by building new, state-of-the-art treatment and research facilities.”

The additional revenue would be used to expand Moffitt’s local footprint. That likely would include a new hospital on McKinley Dr. (aka N. 40th St.) in Tampa, about a mile from the existing hospital on the USF campus, and potentially, a new research campus in Pasco County, which has already approved the zoning and land-use changes for the massive proposed development near the Suncoast Pkwy. that also could include homes, hotels and other commercial enterprises.

Wilson said that a facility such as that would be a huge boon for Pasco County, as it would bring thousands of high-paying jobs to the area as well.

“I think we all know or have been touched by someone dealing with cancer,” said District 2 County Commissioner Mike Moore. “I think something like that would be great for Pasco County, but I think the good it would do for everyone, here and around the world, would be tremendous.”

Moffitt already has a new and innovative partnership with AdventHealth, which was announced earlier this year.

Back in May, AdventHealth Wesley Chapel (AHWC) and Moffitt broke ground on a new $44-million outpatient center to treat cancer patients from a new medical office building on the AHWC campus.

The three-story, 100,000-sq.-ft. medical office on the hospital’s campus will fill a pressing need for cancer treatment here. The outpatient center will offer medical and radiation oncology services and will be designed to accommodate oncologists to deliver chemotherapy, immunotherapy and radiation therapy to patients. It is expected to open next fall.

Moffitt and AdventHealth also teamed up recently to bring early-phase clinical trials for patients who have run out of other treatment options to AdventHealth Celebration near Orlando.

It is that kind of forward-thinking that Wilson said proves Moffitt has been worth every penny it has received from the cigarette tax, and an increase would help it do more.

“I think the return on investment has been great,” he said, adding later, “Moffitt is doing some pretty great stuff.”

cancer Moffitt

Irma Who? One Year Later, Willow Is Making Happier Memories!

Willow enjoyed cutting the hair of Rays second baseman Daniel Robertson at a Cut For A Cure event at Tropicana Field during Childhood Cancer Awareness Month.

On the one-year anniversary of Hurricane Irma, Jennifer Newman wasn’t interested in sharing her memories from the day of the storm.

Instead, she was working on erasing them. “It was a pretty emotional week, knowing it was coming up on Sept. 8 and knowing what it meant,” the Wesley Chapel mom said.

A year ago on that date, her daughter Willow, hoping to be celebrating her third birthday, was diagnosed with leukemia.

That diagnosis created more of a storm in Willow’s life than Hurricane Irma ever could, but the two events have since become interwined. As everyone else shared remembrances on the Irma anniversary about the harrowing moments of the storm and the damage and inconveniences it caused, Jennifer, her husband Shawn Stine and Willow and her older sister Eden were at Tropicana Field celebrating Willow’s birthday while watching a Rays baseball game.

Invited because the club was recognizing September as Childhood Cancer Awareness Month, some of the Rays players shaved their heads to raise money for the Cut For A Cure program.

Willow giggled her way through doing the honors on Rays second baseman Daniel Robertson.

“I felt like we made some great memories that day,” Jennifer said. “I feel like we took back that day. We were super grateful to rewrite history.”

Last year at the same time, Jennifer was frantically trying to get ready for Irma, buying food and water supplies and cleaning the house. Willow ran errands with her, and the two stopped to buy Paw Patrol birthday decorations for her big day.

But, Jennifer sensed something was wrong with Willow. She was sleeping more than usual, she looked pale and she was asking to be held all the time.

Willow had a routine checkup scheduled for Monday, but with Irma set to come through on Saturday, Jennifer decided not to risk its aftermath and took Willow to the doctor in hopes of getting some antibiotics. Her doctor agreed something might be wrong, and Jennifer and Willow were sent to Florida Hospital Wesley Chapel (FHWC) to do some blood work.

The pathologist there delivered bad news. “I’ll never forget his face or where he was standing in the room,” Jennifer wrote on her Facebook page.

Willow was transferred to John Hopkins All Children’s Hospital in St. Petersburg. The FHWC nurses, who gave Willow a stuffed giraffe for the trip, looked sad. With sirens blaring, she was rushed away.

After blood transfusions and more tests, doctors told Jennifer and Shawn that Willow likely had pre-b cell acute lymphoblastic leukemia (pre B-ALL).

Doctors started blood transfusions immediately and vital checks every hour, and sadness set in. The All Children’s nurses, though, made sure Willow still celebrated her big day, throwing a “Frozen”-themed birthday party.

Video from the party went viral and was featured on CNN and in People magazine.

That first night, Jennifer and Shawn slept in chairs pushed up against Willow’s hospital crib.

The next morning, Saturday, with Irma bearing down, Shawn had to leave. The Howard Frankland Bridge, which connects Tampa and St. Petersburg, was being closed, and he had to get back to Eden.

That night, with a daughter newly diagnosed with cancer and separated from her husband and other daughter by a threatening hurricane, Jennifer went outside.

“The wind was picking up,” she says. “I found a bench, sat down and just started crying. It was one of the only times I let myself loose. It was a lot to handle.”

Back On Track…

But, handle it Willow has.

This past year, she spent 70 days in the hospital, had more than three dozen blood transfusions, 15 lumbar punctures (which collect samples of cerebrospinal fluid, or CSF, from the spinal column) and three major surgeries.

She has endured countless trips to the clinic for chemotherapy treatments. She takes chemo every night at home, and one night a week, she has to take nine pills. Her body has suffered from neuropathy, but at the same time, Willow has fought back.

Hurricane Irma will become an afterthought one day. But today, Jennifer says Willow is doing much better.

She is like any other child, running and jumping around, swimming and riding a bike. She is happy and engaged, and other than being poked by needles, she actually looks forward to her trips to the clinic.

“I think she’s made a lot of great strides in terms of learning how to deal with the procedures she has to go through, and we love seeing her,” said Jessica Wishnew, M.D., in a story on the John Hopkins All Children’s website. “She definitely brings a lot of energy and happiness when she comes in.”

On the one-year anniversary of the storms that swept in and changed her life, know this: the prognosis for Willow is good. Dr. Wishnew says that the cure rate for pre B-ALL is in the 90-plus percent rate.

“I know in my heart she’s going to beat this,” Jennifer says. “She’s strong, she’s a little fighter. I know she’s going to beat this.”

Willow will do her fighting with a lot of people in her corner. Just last week, someone in the community dropped by Willow’s home to leave a gift and some cookies. Those kind of things happen often. Jennifer says what were once complete strangers have become some of her closest friends.

“I just want to say, we are blessed,” she says. “We are blessed to be in Wesley Chapel, where there has been so much support. Between that and all the prayers, it has been wonderful.”

cancer rays Wesley Chapel willow

Wesley Chapel Survivor Helping Other Young Adults Cope With Cancer

Rachell Moodie, pictured above with her husband, Matt, and two daughters, Hannah and Madelyn. Rachell was diagnosed with breast cancer at age 24 (below) and now helps other young adults fighting cancer & their families.

Picture a cancer patient.

Chances are, you’re thinking of an older adult, or maybe a child.

It’s not likely that you think of a young adult, but that’s where Wesley Chapel resident Rachell Moodie found herself in 2009, at the age of 24.

She had been married just nine months when she got the diagnosis — breast cancer. She went through 17 weeks of chemotherapy and a double mastectomy.

“People know older adults get cancer and kids get cancer, but there’s this other subset of people,” Rachell says. “People wondered if I went crazy and shaved my head. No one thought I had cancer because it’s outside of the realm of what people expect.”

She says that although she had the support of her family and community, she wanted to connect with other people like her. Even her doctors usually treated patients in different life stages. So, for example, even though her doctors didn’t tell her that the cancer treatment could make her infertile, it did cross her mind.

“I knew I wanted to be a mom,” she says. “So I asked my doctor to let me figure out this fertility thing.”

She was able to have her eggs harvested, starting the process for IVF (in-vitro fertilization). That’s just one reason she’s now passionate about helping other young women who are facing cancer. “If you’ve already gone through chemotherapy,” Rachell says, “it’s too late.”

Rachell has now been cancer-free for eight years. “After going through that journey, I felt like I was on a mission to go through this with other people,” she says, adding that she wants to help others with all of the things she was so clueless about — from the unexpected side effects of chemo, to how to pick out a wig, etc.

A couple of years ago, Rachell met Madison Miller, another young adult cancer survivor, who had created a nonprofit organization for the young adult cancer community, called Spark The Way.

The two were both speaking at an event at the Moffitt Cancer Center on USF’s Tampa campus and recognized their mutual passion. In fact, they both say they instantly believed they would be lifelong friends.

“We just hit it off,” says Madison. “Rachell has such a passion for young adults in the cancer community, so I invited her to join me in Spark The Way.”

Madison was diagnosed with lymphoma in 2013, the same week she lost her grandpa to the same disease.

“He had fought with faith and fought fearlessly,” Madison says. “It was like he unknowingly equipped me to be able to fight.”

Madison says the most important lesson she watched was that her grandfather let people in. “Everyone was always going to treatments with him,” she says. “It was always a ‘we’ thing.”

So, while Madison says many young adults want to push people away when they struggle, even with cancer, “community is everything when you’re going through it.”

Through Spark the Way, Madison and Rachell — along with other “mentors” — make themselves available to cancer fighters, survivors and caregivers.

They’ll talk on the phone, chat online, meet for coffee, or come by a hospital room — whatever they can do to meet the needs of someone who is fighting cancer and would benefit from a listening ear and comforting words from someone who has been there before.

“Friends and family want to support you, but they just don’t get it,” says Rachell. “To have someone who’s been there and can say, ‘I know exactly how you’re feeling and this is how we can face this,’ is so helpful.”

That dream that Rachell once had to be a mom? She’s happy to say it has now come true.

She had to wait until she was five years cancer-free, and then Rachell became pregnant via IVF.

“Madelyn, who’s three, is my daily reminder that God keeps his promises, and you can hold on to hope because there is life after cancer,” she says.

Then, there’s Hannah, who’s now one-and-a-half.

“Right before Madelyn’s first birthday, I became pregnant naturally, so Hannah’s my reminder that God’s bigger than anyone else and He’ll make His plan happen,” Rachell says.

To learn more about Spark the Way or to request a phone call or other contact from Rachell or another young adult cancer mentor, visit SparkTheWay.org or email yourfriends@sparktheway.org.

cancer Rachell Moodie Spark the Way