Mother Of Four Kayla Long Needs A New Kidney To Keep Singing 

On Friday nights, if she’s feeling up to it, Kayla Long loves to belt out her favorite karaoke tunes — maybe Carrie Underwood’s “Before He Cheats” or “Jesus Take the Wheel” — while her fiancé, Chris Candelora, and four boys, ages 13, 9, 8, and 7, cheer her on. 

Kayla says it’s the only time she feels normal. “It brings me a whole lot of joy,” she says. 

The Zephyrhills mom, who grew up in Wesley Chapel, has end-stage renal disease (ESRD), a condition where the kidneys have permanently lost most of their ability to function. She says it stems from years of taking too much ibuprofen, trying to manage pain after surgery to correct severe scoliosis when she was 14. 

“My mom struggled with addiction, so I had been adopted by my grandmother,” Kayla says. “I was afraid to take opiate pills after surgery, so I used ibuprofen instead. But, it was an extreme level of pain and you just can’t take ibuprofen for that.” 

The irony, she says, is that she is still in pain, but now from the effects of ESRD. 

“I literally killed myself not taking pain pills and there’s nothing they can do,” she says. “It just gets worse and worse.” And, Kayla says, it will continue to get worse. 

That is, unless she gets a new kidney. 

“I have been on dialysis for the last two years,” Kayla says, adding that those two years have been filled with pain and setbacks. 

Unable to work, her days are filled with traveling to and from Plant City three days a week for dialysis. She’s away from home for about six hours on those days. The other days, she goes to other medical appointments, if she feels up to it. 

In addition, Kayla has been legally blind since birth, which adds to her challenges. 

It’s all a lot to navigate. Even on the best days, dialysis leaves her tired and unable to do much of anything. “Dialysis is very hard on your body,” she says. “It can cause heart damage, gout and other health complications. I’m exhausted and nauseous all the time.” 

She adds that she had two blood transfusions last year, even having to leave her son’s birthday party halfway through for an emergency visit to the hospital. 

She’s hoping to receive a kidney as soon as possible. Kayla’s been on the transplant list since February. If someone passes away whose kidney is a match for hers, she would be eligible to receive it. But even better, she says, would be a living donor. 

“Transplanted kidneys last an average of five to 10 years from a deceased person,” she says, “but from a living donor, the average is 20 years.” 

Kayla is working with the AdventHealth Transplant Institute to find a living kidney donor. She needs a kidney from someone with type O blood, and says it doesn’t matter if it is O positive or O negative. 

If she finds a willing donor with type O blood, they would go to AHLivingDonor.com to begin a screening process to see if the donor’s kidney is a potential match for Kayla. 

“I have four children,” Kayla says. “I worry all the time. Am I going to leave them before they’re ready? Am I going to get to see them graduate, grow up, fall in love, play with my grandkids? Can I even grow old and get married to the man I love? On dialysis, that’s all up in the air.” 

Kayla Long needs a kidney to continue to be around for her sons Jack, Ari, Keegan & Chris (nephew Leeland is 4th from left). 

Kayla first met Chris on the bus to Weightman Middle School when they weren’t even teenagers yet. “He used to ride his bike to my house and hang out with my brother and sister,” she says. “We’ve been together since we were 22.” 

She says being sick, blind and in chronic pain makes it so the couple can’t do a lot of things that typical couples in their 30s with young kids want to do, but Chris has stuck by her side through all of the trials. 

“My fiancé works so hard to provide for all of us,” Kayla says. “If he’s not at his job, he’s doing a side job or working on our car or fixing something in the house or fixing something at someone else’s house.” 

Unless it’s a Friday night. 

That’s when they take the kids to Commandough’s in Zephyrhills, where they order pizza, the kids get up and sing and dance, and Kayla will take the stage. 

It’s only then that she says she feels true joy. 

“Everybody’s happy,” she says. “I’m happy. My kids are happy. I don’t feel self-conscious. I just get up there and sing, and then all of a sudden, I feel normal for a while.” 

Kayla says she is working on setting up a trust, with legal fees sponsored by Commandough’s, to help provide for her family so Chris can care for her full-time for a few months after her transplant, a necessary part of her recovery. 

To follow Kayla’s journey, search for “KidMe in Your Prayers: Kayla’s Transplant Journey” on Facebook. To start the process to learn more about donating a kidney to Kayla or someone else like her who is on the waiting list for a transplant, go to AHLivingDonor.com

Raj Finds A Kidney Donor!

After six months on a strict diet, Raj Guntuku enjoys a potato chip after receiving a new kidney from Joel Morales. 

It was an ordinary December day and Joel Morales was getting ready to put the latest issue of the Neighborhood News into the recycling bin.

But first, he wanted to see what was going on in New Tampa, and maybe pick up a suggestion for a place to grab some dinner. Since moving to K-Bar Ranch from Ohio in late 2019, Joel and wife Shelby had practically been quarantined the whole time due to Covid. Maybe this night would be the one they would finally venture out.

So, he started thumbing through the pages.

Then, he stopped. A picture of a 13-year-old boy named Raj Guntuku, and his 70-pound Golden Doodle Benji, caught his attention. “I’ll probably never forget it,” Joel says. “It was such a cute picture.”

Joel read the story. Raj needed a kidney. His parents were desperate. 

Then, the strangest darned thing happened. Almost immediately, Joel decided he was going to give Raj his kidney. 

On March 4, just a few weeks after meeting for the first time and passing all of the required tests, Joel was wheeled into an operating room, and four hours later, his kidney had been transplanted into Raj.

“A miracle,” says Raj’s mother Radha. 

Just a few days later, both Raj, who friends and family call “Bunny,” and Joel returned home from the hospital, and they were online playing Fortnite together on the Xbox. 

“Joel is so happy to see him happy,” Radha says. “I don’t know if we will ever meet anyone like that in this world again, but we are so fortunate to have him.”

Raj has a new lease on life, and Joel is glad he could help.

So, the question remains, why did he?

“It seems strange to say, but when I read the article, it just seemed like the obvious thing to do,” says Joel. “I had done a tiny bit of research after I read the article, just to see the long-term impacts of donating a kidney, and it was surprising to me. It seems like there’s really nothing I have to watch out for or need to be careful of. I can’t take any more ibuprofen, and I have to eat enough protein, but to me it’s just life as normal. It just seemed obvious that there’s this poor 13-yr-old kid with his life ahead of him, and I should do what I can to help. Thank God I ended up being a match.”

Joel Morales

A wholesaler for Nationwide Insurance, Joel says he doesn’t regret his decision, even if some of his friends and co-workers questioned his sanity. 

“My boss said, ‘Hold on, let me see if I understand this — you have never met this boy, you never met this family, you have no relationship with them whatsoever, and you just decided to give your kidney to him?,’”  Joel says. “That was the moment I probably understood it was a little bit crazy.”

But, the only person he really had to convince was Shelby, and her primary concern was what if their 2-year-old son Leo, or another family member, needed a kidney one day?

“My thought process was, if you look at the stats, the chances of one of our children or someone in our family needing a kidney are extremely low,” Joel says. “But, the chances of Raj needing a kidney is 100 percent. He needs one. He might not get one.”

It was only a 10-minute conversation. Joel said he probably had that look in his eyes, where Shelby knew he wasn’t going to be talked out of it. Besides, he reasoned, “Hopefully now, we’ve got some good karma coming our way.”

Radha says Joel certainly deserves it. Before he read the article about Raj in the Neighborhood News, she had been relying on a growing list of 15 or so potential donors who had stepped forward after a television report on Thanksgiving Day.

More names were added as time went on. The Neighborhood News article about Raj’s plight hit mailboxes on December 8.

“You put in a great article which was super detailed,” Radha says. “When I read it, I even started to get emotional, even though it is our own story. So many people told us they read it.”

However, day by day, many potential donors had dropped out. Some were talked out of it, others were worried about being able to afford missing work, and some just changed their minds. 

Raj and Joel meet for the first time. 
(Photo courtesy of the Guntuku family)

Soon, a carefully curated spread sheet which, Radha says, had as many as 30 names on it at one point, had red lines through most of those potential donors, and only four remained.

Then, Joel called. He asked Nehru, Raj’s dad, to explain the process. Joel says he told Nehru it sounded as if he had explained all this before, and Nehru said he had. But, few had followed through, and it was becoming frustrating.

Joel, however, was in it to the finish. He filled out the paperwork, got tested and, on Feb. 24, was approved to be Raj’s donor. The surgery was scheduled.

The families finally met at Raj’s Tampa Palms home a few days later. 

Everyone was too nervous to eat, and they just ended up nibbling at the Olive Garden and Liang’s Bistro takeout Radha had picked up. Raj, however, was bursting with joy. 

It was a great night, both families say. Raj and his sister Bhavika, a senior at King High, thought Joel was “cool,” Shelby spent the night cracking jokes and Joel left knowing that he had a made a great decision. 

On the way home, he turned to Shelby and said he hoped the Guntuku family liked him.

“You’re giving Raj a kidney,” Shelby said. “I think they like you fine.”

And they both laughed.

On March 4, Raj and Joel went in for the surgery. Joel was home after two days, while Raj came home on March 9. The families have spoken via FaceTime every day since.

Thanks to Joel, Raj has a functioning kidney and was able to enjoy a happy homecoming after the successful kidney transplant surgery earlier this month.  

Raj had been sick for much of 2020. In early September, he vomited after waking up one morning, and it happened again a few weeks later. He went and had bloodwork done, and the results concerned his doctor. In October, Raj was diagnosed with chronic kidney disease (CKD), which is characterized by the gradual loss of kidney function. He was Stage 5 at the time, and his kidneys were operating at less than 10 percent of their normal function.

Raj has been on a strict diet ever since, and will need to watch what he eats now that he has a new kidney. He told Joel the first thing he was going to do after receiving his kidney was eat a slice of cheese pizza. 

However, his diet will have to be limited. He will need to eat healthier, but Radha says Raj is ready for that challenge. At a Super Bowl party a month before his surgery, everyone was celebrating the Tampa Bay Bucs’ victory with cupcakes. 

“I would like to eat,” Raj said, “but sadly, I cannot. No thank you.”

Raj’s immunity will be lower than it used to be, and special care will need to be taken for the next 90 days. He is on seven medications, gets his blood tested twice a week, and has to stay out of the sun. 

He is eager to shoot some hoops, but contact sports like soccer and football are off limits. His dream to be a grand master at karate, which he has been taking since he was 4, may be in peril, but Radha says they will have to decide on that later.

It is likely that Raj will have to go through this process again, in 20 or 30 years, so he needs to maximize the health of this kidney. “He knows he needs to be careful,” Radha says.

As for Joel, he was off the pain medication in a week and doctors say he’ll be fully recovered in 4-6 weeks.

“They really just said stay away from contact sports, so my future NFL career is no longer an option at the ripe age of 28,” Joel says.

He’s back at work, and every once in a while he thinks about the selfless decision he made. He doesn’t regret it for a second.

“I don’t think I knew, even today, just how big a deal this was, which probably helped with the nerves,” Joel says. “I  genuinely just felt like this was the obvious thing to do. I may not have thought about it as much as I probably should have, but even if I had, I still think the outcome would have been the same. It was definitely well worth it.

“I’d say I’d do it again, but I can’t. You can only do this once.”

Wesley Chapel man finds kidney donor

Kidney for Joey

Kidney for Joey
Joey Richman (left) and Mike Miller have become friends. Miller agreed to donate a kidney to Richman, who suffers from Alport’s Syndrome.

Can a hashtag help find a kidney donor and save someone’s life?

Count Wesley Chapel mom Dana Richman as a believer, after a Facebook and Twitter campaign she started in January helped find her son Joey, a 22-year-old pre-med student at the University of South Florida, a living kidney donor.

Tampa’s Mike Miller, a Mixed Martial Arts (MMA) fighter known by friends as “Muffin Man,” saw a #AKidneyForJoey post on Facebook, and has stepped forward.

The surgery and selfless sacrifice, which will effectively end Miller’s MMA career, is scheduled for Wednesday.

Battling Kidney Failure

Joey suffers from Alport’s Syndrome, a genetic condition that Dana says was passed down from her side of the family, which has suffered a number of deaths from the condition. Alport’s Syndrome causes hearing loss and renal failure. Joey first suffered hearing loss in the fourth grade, but doctors could do little to help, Dana says, until he went into renal failure, which has taken root in the past year.

Joey is fortunate. According to the National Kidney Foundation, more than 100,000 people are awaiting kidney transplants. More than 3,000 new patients are added to the kidney waiting list each month, and 13 people die each day while awaiting a life-saving kidney transplant.

Joey, who lost 30 pounds in the last year, currently administers dialysis to himself every 4-6 hours, for a total of 10 hours daily. Dana says there are 75 boxes of solution in her home. It has made her son weak and tired, barely able to climb a flight of stairs. He is taking his college classes online because getting around campus is too difficult.

Dana has watched Joey deteriorate over the past year, and can’t work herself because she has been taking him to almost daily doctor appointments. She looks forward to April 20 and the months to follow. She says Joey will be isolated after surgery for 3-6 months, but hopes to be well enough to return to classes at USF in August.

“He will feel amazing, probably back to how he felt in elementary school,’’ Dana says. “He’ll be able to do everything other people his age can do. I have goosebumps already just thinking about it.”

Response Overwhelms Mother

Dana said she was stunned by the outpouring of support for her son’s plight. She says Miller is “the most humble, respectful young man you’ll ever meet.’’ She is also quick to thank the dozens of folks who called Tampa General Hospital (TGH) to volunteer for testing when the story broke.

She said TGH received up to 40 calls a day, and many are still volunteering to be Joey’s back-up if the transplant fails for any reason. A host of others, she added, asked to be matched up with others needing transplants. “Amazing,’’ she says. “That makes me happy.”

For Dana — a single mother of three boys including Wiregrass Ranch High graduate Jason, 19, and current WRH senior Jake, 17 — the amount of community support has been a blessing. The one-time military family has moved up and down the east coast, settling in Wesley Chapel three years ago from Pasadena, MD. Even then, she wasn’t sure what the future held.

“I’ll tell you what, Wesley Chapel is an amazing place,’’ Dana says. “Tampa is too, but Wesley Chapel, we couldn’t imagine any place better. It really feels like home, like we finally have a place to put our roots.”

To donate to the Richman family, visit GoFundMe.com/AKidneyForJoey. To help Mike Miller in his recovery, visit GoFundMe.com/6aunghtw. To become a kidney donor, contact Jenni Binns of Tampa General Hospital at 844-5669 or email her at jbinns@tgh.org.